Skip to main content

You are using an old and unsupported browser. Most core functionality will not work. Please upgrade to a supported browser - Google Chrome

Paediatric Palliative Care Conference Australia 2022
Australian Paediatric Palliative Care Conference
    Times are shown in your local time zone GMT

    Program

    *This program is subject to change*

    Filter & Search
    Filters
    Clear
    Agenda Categories
    Session Type
    Stream
    Rooms
    Close Filters
    13 October 2022
    9:00 am - 9:30 am - 13 October 2022

    Official Opening

    2022APPCC - Room 1
    13 October 2022
    Concurrent - Clinical Practice - Room 1
    9:30 am - 11:00 am - 13 October 2022

    Stream 2 | Concurrent Session | Sustainable Practice

    Concurrent - Sustainable Practice - Room 2
    13 October 2022
    11:00 am - 11:15 am - 13 October 2022

    Meet Your Concurrent Presenters

    Networking - 2022APPCC
    Join a networking room to continue conversations about a presentation that you have just watched and meet the concurrent presenters. 
    Each room holds 16 guests and will run for approx. 10mins 
    13 October 2022
    Workshop - 2022APPCC - Workshop Room 1

    Presenter: Rachel Callander

    This workshop explores the impact of language, and the power of words. Our language shapes our landscape. The words we speak influence the behaviour, attitudes, and beliefs of ourselves and others. Within high-stakes contexts, such as the sharing of difficult information, our words carry an enormous emotional weight. They can alienate and add trauma, or they can honour and empower. We have a responsibility to manage this power with care and diplomacy.
    13 October 2022
    12:30 pm - 1:30 pm - 13 October 2022

    Keynote | Clare Bowditch

    Plenary - 2022APPCC - Room 1
    ‘If you can speak, you can sing’ - a truly unique live-taught masterclass in Courage and Self-Leadership.

    Clare will teach audiences to challenge their limiting stories and discuss her personal story around sibling grief, and offer insight into the struggle of not having the language or cognition to deal with acute loss at a young age.

    Using stories from her own struggles and triumphs, Clare teaches us to face and name our inner critics. In doing so, we tap in to our ability to live full, amazing lives and develop our own inner champion.

    Clare is one of those effortlessly mesmeric communicators. Her rare blend of insight and charisma means that people cannot help but be thoroughly engaged when she speaks. It will be a rare audience member that leaves being anything other than charmed and enlightened.
    —Waleed Aly

    When Clare speaks she brings everyone in the room with her. Clare injects this special kind of electricity into each and every audience member, making them feel bigger, bolder and braver.
    —Jamila Rizvi
    13 October 2022
    Join a networking room to continue conversations about a presentation that you have just watched and meet the concurrent presenters These rooms hold up to 16 people at one time
    13 October 2022

    Presenter: Gail Hilton

    Introduction:
    This workshop will explore  what childhood dementia is, the symptoms children and young people experience and statistics associated with it. Through a series of videos, families share their experience and talk about what they need from the health system. The materials presented in this workshop have been developed with funding from the Federal Government and are informed by a burden study prepared by THEMA Consulting: Childhood Dementia in Australia.  

    Background:
    Childhood dementia is an umbrella term encompassing 70+ rare and ultra-rare genetic conditions. When considered collectively these impact 1 in 2800 live births and result in more than 90 premature deaths per year in Australia. For comparison, there are 92 deaths per year in Australia from cancer in children aged 0–14 (Australian Institute of Health and Welfare, 2020). Until recently, these 70+ conditions have been considered individually, with little recognition, research  or support. Collectively addressing childhood dementia provides the opportunity for greater scale, impact and improvement of both services and therapy development. 

    Aims/Objectives:
    The audience will:
    Understand what childhood dementia is, its causes and symptoms; 
    Understand that when considered together, the disorders that cause childhood dementia cause a relatively high proportion of paediatric deaths;
    Gain further insight into the progressive nature of the condition and the wide reaching impacts of dementia on children and their families; 
    Consider how services can  more appropriately meet the needs of childhood dementia consumers. 
    Concurrent - Psychosocial - Room 3
    Quality of Care Collaboration Australia proudly supporting this discussion.
    13 October 2022
    Join a networking room to continue conversations about a presentation that you have just watched and meet the concurrent presenters These rooms hold up to 16 people at one time
    13 October 2022
    Concurrent - Psychosocial - Room 1
    Quality of Care Collaboration Australia proudly supporting this discussion.
    3:00 pm - 4:30 pm - 13 October 2022

    Stream 2 | Concurrent Session | Sustainable Practice

    Concurrent - Sustainable Practice - Room 2
    13 October 2022

    Presenter: Peter Westoby

    This workshop aims to do three things.  First, it will support participants in understanding community development principles and methods. Second, it will create spaces to explore and elicit the meaning and implications in their own context/work places.

    Third, it will offer a case study of a paediatric-palliative care hospice’s journey in community development. The community development approach integrates an action learning approach to public health and place-based work , drawing on the globally recognised Compassionate Communities approach, that involves:
     
    • Enhancing community and social connectedness for families who’s children have life-limiting illness;
    • Advocates for social and community inclusion and access to public facilities;
    • Facilitating compassionate community conversations, which build social capacity for compassionate neighbours and supports;
    • Building partnerships with families, communities and other stakeholders, to ensure the work is community and family-led. 
     
    The workshop aims to shift people’s approach to ‘being helpful’ (not helping) families-in-communities, being attentive to language, discourse and power.
    13 October 2022
    5:30 pm - 5:45 pm - 13 October 2022

    Closing Address

    Plenary - 2022APPCC - Room 1